Okay, we are convinced James has a PDD (pervasive developmental disorder) but which one? probably not autism because he probably wouldn't qualify under the right requirements. That's why we think NOS (not-otherwise-specified). However, a lot of people keep saying Aspergers. Everything I've read on Aspergers is a definite no. But I'm not ruling it out entirely. If it is Aspergers, it is a mild form. After all, James is empathetic, emotional, outgoing, and very physically coordinated.
However, I just read one article on Aspergers that has a LOT of James' characteristics. Here's the link. I kept reading and thinking "This is James! This is James!" Look at what it says about following directions, being teased, in the classroom, disorganization, story-telling long repetitive convoluted story, naive and little common sense, crossing the street (I'd allow Megan to cross the street alone before I would be willing to let James cross), not cluing in on social cues, the early years, etc.
"The deficits that comprise Asperger Syndrome are not always readily apparent, especially in milder cases. The child is usually of average intelligence or higher, yet lacks what are essentially instincts for other children."
"These problems are not misbehaviors, but rather the child's responses to an inability to comprehend what is going on around them and inside them."
"They feel their feelings more intensely."
I often feel the need to warn new people that James is a little different. Unfortunately, I can't really explain how he's different. They take one look and say "he seems like every other kid." Just wait till you've spent a few hours with him, I think. But instead of taking what I've said into consideration, they reject him. At least, that's how I feel, especially from adults. I even feel like people are thinking those judgemental phrases this article addressed so well: "The most destructive things you can say are those that convey your lack of trust in their ability to parent." Maybe people don't say it out loud. But I feel like everyone is thinking it. Maybe if he wore a label, people would give him a chance and wouldn't think I'm the worst mother in the world. Then again, if people heard the label, they'd think he was retarded before they gave him a chance. What do you think?
Life is the goal
2 comments:
PDDs are a very interesting subject. Asperger's is generally considered to be a "higher functioning" form of Autism. People with Asperger's often lead very normal lives and many are undiagnosed because they are so normal. You are also correct that Autism and Asperger's are spectrum disorders...meaning that you can have a mild form or a severe form. If you're worried, go and have him evaluated....but diagnosing children is very hard and is more of an art than a science.
Julie, It looks like you've been doing a ton of research, and I hope you can come to some sort of conclusion soon... You must be feeling frustrated. I have suspected, for some time, that my sister's son may also have Asperger's, or something "on the spectrum." Have patience w/ James, and especially with yourself. You're doing a great job!
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